We need your help!
When my son was diagnosed with Neurofibromatosis twenty years ago, my husband and I had no where to turn. This disorder was so unknown to the doctors in San Diego that we had to travel to many other hospitals just to receive experienced care. This travel over time was expensive and burdenson on top of the fact that we had to manage all the care ourselves. This meant learning as much as we could to know about the disorder and how to provide appropriate care. Over the years, many hospitals throughout the states have opened an NF clinic where patients can come to learn about the disorder, get help to navigate the many medical issues and to be followed by experienced physicians. Rady Children’s Hospital is working toward opening an NF Clinic. Your support will help to open this clinic and ultimately support patients who have NF. So to do that, we are have a fundraiser to compete in a Mario Kart Race in October. Go to www.teamgarrett.org to get all the details. All this fun because we love Garrett and we want to help other NF families. Please join us or donate to this important cause.
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